I’ve always had a love/hate relationship with sleep and rarely feel refreshed even if I do get a decent amount of sleep. But as my pain has worsened, I’ve found myself completely wiped out, who knew pain would be so exhausting?! I’ve hardly done anything today because my body says NO! Over the last 15 months, since first being diagnosed with Fibromyalgia and Joint Hypermobility (and then an official diagnosis of EDS3 in December 2016), I’ve started to understand my body more, learned some of the triggers that can amplify my pain and how I can try to retain as much energy day by day. The hardest thing with these chronic illnesses is, that you can go from one extreme to another daily, on an adrenaline high one day and the next completely drained and in agony.
I found ‘The Spoons Theory’ to be helpful in explaining to people who don’t understand chronic fatigue, just how our energy levels work. Please follow link if you don’t already know about ‘The Spoons Theory’